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Welcome to Our Site! We hope you enjoy our Julicorn!

About

This is the story of Julia Rae, our little Julicorn.  Watch her grow and learn in her own way as she and her family navigate Epilepsy, Septo Optic Dysplasia and Semi Lobar Holoprosencephaly.  Watch what she can do, where she will go as our one of kind little girl makes her way in the world. Follow her story to learn more about how brave and strong she can be.

Blog

The Hospital

Two hours after Julia was born, I strapped her into her car seat and drove her from the birth center to UNC Children’s Hospital.  They were waiting for us.  I was no longer a woman that just went through hours of labor and delivered a child, I was now a woman scared for the life …